Tag Archives: Down’s Syndrome

Vacation 2017 – Georgia

Hi all,

Sorry its been so long since I last wrote on my blog, but I promise it will not be happening again.  I wanted to give you a bit of an update on what I am doing and then I would like to know what you are doing.

I have changed jobs and will now be working 5 minutes from home!  That is quite a change from my 45 min to 1 hour 30 minute drive.  Paul and Alex will be Juniors this year so I really want to be closer to them.  Michael will graduate next spring.

My goal with all of this is to eventually be available to the boys when they need me.  We did go and look at a facility in Friendswood, Texas that is wonderful called Hope Village.  They offer a day program as well as residential.  It is a great option, just not sure about letting the boys go.

When we started this journey, we had no idea what we were getting into or the things we would learn.  Next month we have to begin the process of getting Guardianship of the boys so we can take care of them.  HIPPA does not allow parents to continue as the spokes person for our kids after 18!  Who knew?

So now my question:  What do you do for work or income?

Let me know and if you are interested, I will put you in my blog!

Boys much younger!

I’m Human!

Like so many parents of special needs children, I have spent many hours and days with doctors. So today, while we were cleaning the boys room, I tripped and fell. In the process I broke my big toe!  Like any good parent I blew it off and just raised it for a little bit knowing I would be fine.  Unfortunately my toe had other ideas.  So my daughter took me to Urgent Care and after x-rays it seems I chipped the bone at the joint.  So I am now wearing a shoe that is extremely stylish and will be using it for the next 4-6 weeks.  Of course my kids don’t care and I am suppose to do the normal stuff.  However, I have had a shot in my tush and am feeling ok right now.  So Tomorrow I will share the joys and excitement of having  identical twins with Down’s Syndrome and a deaf Autistic grandson running in the house.  Night all!  Mom